It's been a long time since I've shared anything! I have never done a blog before and didn't think anyone would care what I had to share, but I decided today after listening to a fellow Scentsy consultant (thanks, Allison) that sometimes we just need to share whether anyone is listening or not!
Emery was doing SO good! Her protein ratio was down to 1. It needs to be down below 1, and she was so close! Then, one of our worst nightmares happened! She went in for a biopsy to check to see if the FSGS was attacking the new kidney. When she was released from the hospital (it was just an overnight stay), she just didn't seem to be herself the following day. She was super tired, didn't want to do anything, just didn't feel right and then she had a fever. My daughter gave her Tylenol, but after a day or two, she was getting worse. They took her in to the hospital, and she was admitted. She had contracted a severe infection through her port when someone accessed it while she was in the hospital. That was her kidney doctor's conclusion, not ours! My poor baby was in the hospital for a week fighting this awful infection, caused by someone else's negligence! You want to get mad, but you find yourself feeling thankful she's still with us! The infection was in her port access, which spread throughout her body, into her blood stream and very, very close to her heart! She was on IV antibiotics in the hospital and then a PIC line was put in her arm, so that her parents could give her the antibiotics from home each day. She was on this high dose for 3 weeks and during the hospital stay, there were no plasma exchange treatments done, so we knew once she started doing those again, the numbers weren't going to be good, and we were right! She was back to a protein ration of 6, and it's like we were starting all over again! Before the infection, she only went 1 time a week and now she's back to twice a week, and she has to have Iron infusions once a week for 8 weeks!
Why is this happening??? I just don't understand, and I fight a daily battle with myself that this is all part of God's plans! I don't understand how a plan can include an innocent little girl fighting on a daily basis, taking the medications she does and having to live the kind of life she's living! There's so many things she can't do, but I'm thankful there are so many things she CAN do!
Stay strong, my sweet Emery Grace! You aren't fighting this battle alone, and you never will!
Grammy
